Day 8

Mackenzie started the morning with a weight check - she was down about 2/3 a pound - it should have been up after two days of food, food, food. She is so tired of us nagging (this is more so Jason who asks her if she wants about 100 different things at each meal/snack).

She had her second Pulmonary Function Test during this hospital stay with great results (I think) - Thursday when she did them, she was at (FEV1) 60% before Albuterol puffs and 68% afterwards. Today, she was 74% before and 81% after! According to data they pulled for us, she has not been above 80% since January 2005. We did have them explain exactly what she is seeing on the computer as she does the test and what it means, I think maybe that helped quite a bit - so I wonder how effectively she's been doing this test for the past several years.

They've added more Prevacid since she's at her max dosage of enzymes and started her on the Hypertonic Saline.

Right now, this is her schedule (treatment/meds) minus all the eating -

• Ultrase MT18 - 4 w/ Meals, 3 w/ Snacks
• Morning Meds - Prevacid, ADEK, Claritin, Flonase & Singulair
• 6AM - Nafcillin IV
• 8AM - Treatment - 4 puffs Albuterol, Vest (Pulmozyme, Hypertonic Saline during Vest), Flovent, and TOBI (1 hour total time)
• 12PM - Treatment - 4 puffs Albuterol and Vest (30 minutes)
• 12PM - Nafcillin IV
• 3PM - PT on roof
• 4PM - Treatment - 4 puffs Albuterol and Vest (30 minutes)
• 6PM - Nafcillin IV
• Evening Meds - Prevacid
• 8PM - Treatment - 4 puffs Albuterol, Vest (Hypertonic Saline during Vest), Flovent and TOBI (1 hour total time)
• 12AM - Nafcillin IV