Sunday, January 31, 2010
More Snow
Thursday, January 14, 2010
This & That Thursday - January 14
Is there such a thing? If not, let's start it...Here is my This & That Thursday List:- Have you donated to help relief efforts in Haiti yet? I texted HAITI to 90999 to donate $10 to the Red Cross and it was so easy to do. If you haven't done it yet, please do if you have it to give!
- Mackenzie has gained over 10 pounds in the past month and a half - HOORAY! So, I realize she is almost a teenager and it's probably not cool for me to be talking about her weight but she knows how important it is to get to 50% BMI and she's working really hard (that magic little appetite enhancer pill has really helped), so she's excited too.
- CYSTIC LIFE! It's a great new site for CF patients and their family, friends and caregivers. I still need to work on my profile. It is going to be a great place to share information!
- We've got mail again. Last week with the poor road conditions our mailbox got in a fight with a car and lost. Jason put the new one in tonight. I love, love getting the mail and it has not been fun going to the post office to pick up. Why is it, that when there is a line out the door and only two postal workers working the counter, after a few minutes one (of the two) puts up the "next window please" sign and walks away?
- Peyton is selling Girl Scout cookies. Mackenzie was a Girl Scout for a while and Peyton would beg to sell cookies for her so she is loving it! If you live in NWA and would like some, she would be more than happy to put your name and order on her little form.
Wednesday, January 6, 2010
Pampered Chef Fundraiser for CFF
If you'd like to order something, Carla's website is www.pamperedchef.biz/carlalaing. Click "Shop Online" then enter "Cystic" and "Fibrosis", then start your shopping for a great cause! If you live out of town, they have a direct ship option. If you'd rather just let me know what you want, I can add it to my order. They are closing the show on January 19.
If you live locally and would like to attend the show at the home of Karen Klane on Wednesday, January 13, let me know and I'll send you the evite.
Of course, if you have anything for the silent auction we would be so appreciative!
Sunday, January 3, 2010
SNOW
Now they are all out there AGAIN! I'm sure tomorrow will bring more of the same. I'm excited the girls have a snow day, I wasn't ready for them to go back to school.
Thursday, December 31, 2009
Farewell 2009, Hello 2010
A few highlights - In this past decade, we added a baby (Peyton in October of 2000) and a dog (Eddie in December 2003), Mackenzie went through Elementary and Middle Schools and started Junior High. In 2009 we built and moved into our new home, Peyton made a smooth transition to a new school and Mackenzie's good health for the past couple of months of 2009 makes us very happy . Every day is a gift and we share them with so many wonderful friends. We can't wait to see what great things 2010 brings.
Happy New Year!
Tuesday, December 29, 2009
December 2 (+27 Days)
Friday, December 25, 2009
Friday, December 18, 2009
My Dream for CF
Video posted by the Cystic Fibrosis Foundation. I have the privilege of working with Charlotte (featured on the video) to raise funds for Trey, Mackenzie and all the other patients, bravely fighting cystic fibrosis everyday.
Saturday, December 12, 2009
ACH Performance
You all know from this past summer how much I love these words that you walk under upon entering ACH. Normally when we have Mackenzie there we are rushing in and out and I've never snapped her picture with them.
Wednesday, December 9, 2009
I'm in Love...

Monday, December 7, 2009
It's Beginning to Look (and Feel) a lot like Christmas...
Saturday, December 5, 2009
Winter Wonderland
Sunday, November 29, 2009
Thanksgiving 2009
Update on M's meds - both of the new additions seem to be working! Hooray! Much less coughing and much more appetite - usually around 9pm.
Tuesday, November 24, 2009
ACH Appointment
Mackenzie had a FANTASTIC visit with Dr. Warren and the ENT, Dr. Richter, yesterday. We were nervous going down because there was the possibility of an admission with her recent weight loss. We scheduled this appointment last week because Mackenzie had lost about 5-7 pounds and she had been coughing all through the night (but seemed to feel great during the day). They put her on an antibiotic and inhaled Fortaz and scheduled us to come in yesterday. We were also able to get an appointment with the ENT for help figuring out these sinus issues Mackenzie's been having (we thought they were allergy related but her recent allergy skin test showed that she wasn't allergic to anything).
First off, Mackenzie got finally got her flu shots!Her Pulmonary Function Test showed numbers closer to what we were seeing when we left the hospital in July (and those were better than they'd been in a very long time). Lungs sounded very clear and we'll get the results from the culture soon. They put her on an appetite stimulator to keep her hungry more frequently and hopefully she'll be putting her weight plus some back on soon.
On to the ENT. Her sinuses LOOKED good but we still have all the symptoms we deal with at home...we went over what our concerns and what her symptoms are and Dr. Richter asked a few questions then said we were going to think he was crazy but that her sinus issues were being caused by reflux! Including the coughing through the night and in the morning. She's already on reflux type meds to help her enzymes work better but now we'll add another at night to help and I can't wait to see if it helps.
Sunday, November 22, 2009
Girls On The Run
With her running buddy (and Daddy) Jason:
It was a busy fun day and last night Jason and had a date...dinner and a movie - The Blind Side, great movie!
This morning catching up on facebook I saw the wonderful news that Natalia got her lungs yesterday...I missed the original post which has since been taken down so if anyone has more information, please let me know.
Today we are resting up so tomorrow we can get up at 4am to take Mackenzie to ACH. I called last week hoping to see Dr. Warren - Mackenzie's been coughing more at night and has lost some weight (they'll consider an admission with the weight loss but I am hoping that won't be the case, she seems to be feeling great otherwise and we can work on getting the weight up at home). We'll also be seeing an ENT since her allergy skin test showed she is allergic to NOTHING, yet there definitely seems to be something going on with her sinuses. They put her on inhaled Fortaz since she grew psuedomonas again in September and it was resistant to TOBI. I think I've finally gotten the hang of mixing it.
I hope everyone is having a great weekend!

