This week (and every week) I am thankful for knowledgeable doctors, helpful medications, CF medical advancements, fellow CFers and CF families that provide information and set wonderful examples, and supportive friends and family!
Mackenzie had a FANTASTIC visit with Dr. Warren and the ENT, Dr. Richter, yesterday. We were nervous going down because there was the possibility of an admission with her recent weight loss. We scheduled this appointment last week because Mackenzie had lost about 5-7 pounds and she had been coughing all through the night (but seemed to feel great during the day). They put her on an antibiotic and inhaled Fortaz and scheduled us to come in yesterday. We were also able to get an appointment with the ENT for help figuring out these sinus issues Mackenzie's been having (we thought they were allergy related but her recent allergy skin test showed that she wasn't allergic to anything).
First off, Mackenzie got finally got her flu shots!Her Pulmonary Function Test showed numbers closer to what we were seeing when we left the hospital in July (and those were better than they'd been in a very long time). Lungs sounded very clear and we'll get the results from the culture soon. They put her on an appetite stimulator to keep her hungry more frequently and hopefully she'll be putting her weight plus some back on soon.
On to the ENT. Her sinuses LOOKED good but we still have all the symptoms we deal with at home...we went over what our concerns and what her symptoms are and Dr. Richter asked a few questions then said we were going to think he was crazy but that her sinus issues were being caused by reflux! Including the coughing through the night and in the morning. She's already on reflux type meds to help her enzymes work better but now we'll add another at night to help and I can't wait to see if it helps.
4 months ago

4 comments:
Reflux?? I hope the new meds work and she gets better real soon. I think lil' chris is going to need an antibiotic soon, he has been coughing off and on for a week or so. I just never know when to call. He only does it a few times a day, but it doesn't sound good:(
M
So glad the ACH appointment went well! They seriously have the most amazing doctors there.
Have a great Thanksgiving and I'll say a little prayer for Mackenzie's continued recovery : )
Hope it helps her! Happy Thanksgiving! What are your plans? We are going up to Trevor's parents for the day. The rest of the weekend I will try to get the house decorated for Christmas. Why does it show on your page that I haven't updated my blog in over 2 months? Miss you all! Tell the girls hello!
Hope it's working~what a crazy discovery!
Post a Comment