Inhaled Meds

Mackenzie's daily inhaled meds. 30 nebulizers pictured, the average number of nebs Mackenzie uses in one week. She uses/we sterilize 1526 nebulizers a year.

Oral Meds

Daily oral medications - Adds up to over 12,000 per year!

For Mother's Day

In honor of Mother's Day, my CF Awareness Photo today is of the very first time I laid eyes on my (first) beautiful baby girl. She was born on Monday, July 21 1997... and this was the morning after, and, for only a moment before she got on the Angel Flight helicopter and was taken to ACH due to Meconium Ileus (one of the first signs of CF). I had to stay behind to recover from my c-section and was able to touch and hold her for the first time on Thursday. She had her CF sweat test and positive diagnosis at ACH on Friday, when she was 4 days old.

Dr. Warren

Mackenzie sees her CF Team every three months, and Dr. Warren has been her pulmonologist since she was born. Dr. Warren is always so proud of the great job Mackenzie does in taking care of herself but he is never satisfied. He says the day he says he is satisfied, is the day we need to find a new doctor.

Treatment Time

If you add Mackenzie's CF treatment time up for one year it would be equal to her doing treatments 24/7 for almost the entire month of February (581 hours, or 24+ days).  Hard to wrap your mind around, I had to do the math several times!

30,000