CPE Pet Parade!

It was Pet Parade at Peyton's school today.  Peyton decided to take Gizmo instead of Eddie, which I thought was the better choice after seeing all those doggies...I'm not sure Eddie would have behaved.  Gizmo was VERY well behaved!



Inhaled Meds

Mackenzie's daily inhaled meds. 30 nebulizers pictured, the average number of nebs Mackenzie uses in one week. She uses/we sterilize 1526 nebulizers a year.

Oral Meds

Daily oral medications - Adds up to over 12,000 per year!

For Mother's Day

In honor of Mother's Day, my CF Awareness Photo today is of the very first time I laid eyes on my (first) beautiful baby girl. She was born on Monday, July 21 1997... and this was the morning after, and, for only a moment before she got on the Angel Flight helicopter and was taken to ACH due to Meconium Ileus (one of the first signs of CF). I had to stay behind to recover from my c-section and was able to touch and hold her for the first time on Thursday. She had her CF sweat test and positive diagnosis at ACH on Friday, when she was 4 days old.

May 6 - Walk This Way with the Finest

Laura (our NWA CFF Development Director) & Stephenie. Stephenie won the Cyr Lawson award as the Finest Honoree raising the most money! And, she was smokin' hot! Fun night, fun event, lots of money and awareness was raised!

101 Dalmatians

Can you spot my little Scottie dog?

May 5 - CFF

Barely made it for my May 5th post!  I went to visit a friend who is at ACH with her son (check out their CaringBridge site) and it was a whirlwind trip.  Made it back in time to go to Peyton's 4th Grade Musical - 101 Dalmatians.  They did such a great job!  I plan to post a video soon.  After that, I came home to work on more wine bottles...we have another CFF event tomorrow night - Walk This Way with the Finest Fashion Show -  and they were wanting to use our Wine Opener bottles BUT I wanted to make new, blue bottles to match their decor better.  So, today's CFF Awareness post is that we think a positive aspect of CF is that we have the Cystic Fibrosis Foundation.  We think they do great things and I love they use the money that is raised so wisely.

Dr. Warren

Mackenzie sees her CF Team every three months, and Dr. Warren has been her pulmonologist since she was born. Dr. Warren is always so proud of the great job Mackenzie does in taking care of herself but he is never satisfied. He says the day he says he is satisfied, is the day we need to find a new doctor.

Treatment Time

If you add Mackenzie's CF treatment time up for one year it would be equal to her doing treatments 24/7 for almost the entire month of February (581 hours, or 24+ days).  Hard to wrap your mind around, I had to do the math several times!

30,000

May 1 - CF Awareness Month