CF Clinic Checkup

4th post of the day - I don't like getting so behind on the blog where I have to post several things at the same time!

On Wednesday I took Mackenzie to her CF Clinic visit (Jason was out of town). She had a very good check up. Great weight gain, clear sounding lungs and she was so excited to tell Dr. Warren that she's running Cross Country. Her PFTs were down BUT her allergies are bad - so, is this the cause?? We have finally scheduled her allergy skin test for Monday, October 12 so I hope we finally get this figured out. I'll hear from Dr. Warren this week to see what her culture results are and if she needs an antibiotic.

I know several of you fellow CF families are familiar with the Power of Two. I was not until I received a message from a friend from elementary school (facebook really is amazing!).

From Laura on September 20:
My boyfriend, Nickolas Rossi, is a cinematographer. He is going to Japan on October 1st to shoot a documentary about twins with cystic fibrosis. They both have had double lung transplants in the US but are from Japan, and knowing you, and your research, you probably have heard of them? Below you will find the website. They are going to Japan to ask Japanese officials to allow transplants as it is not readily available there. My boyfriend will be shooting everything. The women live in San Francisco now and on Sunday they will document them getting ready for Japan, talking about the medication they have to bring with them. I would love you to be facebook friends with Nickolas as he travels through Japan with these ladies, as he documents. Perhaps you could help spread the word. This film will premier at SUNDANCE. You and your family are a bright figure in all of this and I want to make sure that the word is spread the right way, which you do well. The website is http://www.thepoweroftwomovie.com/the-book/ Check it out and let me know your thoughts!Love,
Laura

She sent this on September 20 and I wish I would have shared it sooner! Please, check out the website and follow them on Facebook and Twitter.

Sunday, September 27

When Jason was busy working in the yard and Mackenzie was at her youth church group, Peyton and I went with her class to see "Cloudy with a Chance of Meatballs". Mrs. Phelps organized the outing and the class is going to compare and contrast the book to the movie (love this!). Sydney, Peyton & Molly:

Peyton with Mrs. Phelps:

Saturday, September 26

Last Saturday was pretty busy - as is everyday lately (reason for my lack of blogging!). Mackenzie and I started the morning with a movie. The girl's dance studio had a fundraiser and we all went to see Fame. Peyton had a soccer game and didn't get to join us.

I found it to be hard taking a picture in a dark theatre. Tatum, Emily, Maddie, Mackenzie & Rachel: Peyton got to have some fun too - she went to Molly's party at Justice and she turned into a little rocker. Oh my.

To finish the day, the Urhahn's had a group over before cotillion for pizza and games.

TailGator

Last Friday night (September 25) we attended our first TailGator at Peyton's school. Peyton had a great time (and got information for her school newspaper article).
This was her favorite part of the night, the camel ride:

There was so much more but I got there late with the camera!